To offer support and information to individuals, parents & whanau and the community affected by Fragile X syndrome and Fragile X-associated Disorders. To raise awareness of Fragile X and the benefits of diagnosis.
Fragile X Syndrome (FXS) is a genetic condition that causes learning/intellectual disability, anxiety, behavioural and learning challenges, delayed development, speech and communication challenges, sensory sensitivities and autistic like behaviours. Strengths include strong imitation skills, good memory and great sense of humour. While there is currently no cure for FXS, targeted interventions, supports and environmental accommodations can make a big difference to positive life outcomes for people affected by FXS.